How did I ever mange this blog before we came home? It seems that something comes up (usually bedtime!) and blows my good intentions. It's T+498, and time has been flying. Torie is doing so well, and here's some of what she's been doing.....
On May 24th she finally got back into Physical Therapy, Speech, and Occupational Therapy. We had been trying to get her back in since we got home, but we were always told "We're too busy. We'll call when we have an opening." And we kept trying with the same results. Lexie went to Family Health West one day and after telling them that Torie has Hurler's, and had a stem cell transplant, they said "She needs to be in therapy right away! Can you start tomorrow?" Hallelujah! They are awesome...they have very few pediatric therapists, but they have all made room for her. Even if it means they work longer days. They were very worried about us having to get there 3 days a week, but the office is about a minute and a half from Lexie's. I have to drive across town, so it takes me about 5 minutes! Lexie and Torie moved to Fruita, and it's so nice having them so close.
May 31st, Torie got her G-Tube (AKA the medicine tube) taken out! She is still only on Bactrim on weekends, and she takes it in her mouth like a big girl. Her labs continue to be in the normal range, and even her enzyme level has come up. Her last one from the 31st, and it came back at 39! Normal is anything over 25. We couldn't be more pleased...this is what it's all about! We spent last weekend in Ouray for my birthday with the Schmitt's. Connie made a cheesecake, and Stacey helped Torie put candles in. We only had to "put the fire on and sing" 3 times. I love being 29. Speaking of birthdays, yesterday was our dear friend Deirdre's (Liam's Mommy) birthday, and today is Jerry's birthday. He had a party at RMH today, and if you're into Facebook you can see pictures on his page. (Put in "Jerry" in your search. He's pretty famous.) Mom and Dad left yesterday to head to The Cabin. I'm so glad they were able to go. They haven't been there for almost 2 years, and it really is time for life to get back to normal. One year ago today we left Minnesota and our friends there to start our journey home. Torie is such a different girly than she was a year ago. She sings, she dances, she swims, she runs, she thrives. In all the time I spend with her, I rejoice in every moment - she is such a blessing and a miracle! Vic-Torie!
