T+777 Torie's 5!

 Happy Birthday to Torie!  We celebrated her birthday with a small family party, but we missed having Uncle Shaun here.  He'll be here tomorrow, though.                                                Torie and I were talking about her birthday a while ago.  I asked her what she wanted to do, and she said she wanted " a purple party.  With a purple cake.  And ice cream inna cone."  Tuesday we went to pick out her cake.  She told the baker she wanted "a purple cake.  With flowers."  I asked her what kind of flowers and she told me "the frosting ones."  (Yes, another forehead slap.)   The she said, "And I wanna blue one and a pink one and a orange one and a yellow one with green leaves."  I picked it up earlier today, and it was just, uhm, beautiful.  She loved it.  It was exactly what she wanted!                        

 She got a Jessie doll from her Mommy and Ryker, and it was by far her favorite present.  She loves "Yessie."  She couldn't get it out of the box fast enough!      

Torie has had her hearing aids for about 3 weeks now and she does excellent with them.  Just like her glasses, she doesn't take them out, and wants them in as soon as she get up.  We really hoped that was how she'd do.  It's been much easier than we thought.  She's just that good! 

Thanks as always for checking in.  I sometimes feel bad that I don't get this updated more often.  But more frequent updates generally means things aren't going so great.  So I don't feel that bad!  She is excellent!

More Pop Tabs

AAAARRGH!  I had to start a new post; I lost the rest of the pictures, and in my blogging ignorance, I don't know how to add them, hence, an addendum.  Silver lining?  I already have a post for March! Maybe it's a sign.  Anyway, this'll all make more sense if you scroll down to the previous post first.  I probably should have told you that at the very beginning instead of all this drivel!

So anyway, Torie loved the new castle.  She was a little hesitant about going in RMH the first time.  She told us again, "I have to go home.  My Mommy needs me."  Hopefully it will get easier going back since we only did the week vacation! 

When we got back, we went to meet Girl Scout Troop #140 in Grand Junction.  They have been collecting pop tabs for Torie.  83,500 pop tabs.  55 pounds of pop tabs.  How incredible is that?  Torie and Papa Tom mailed them to Jerry.  The Girl Scouts also gave Torie a Girl Scout bunny, complete with a skirt, a sash, and badges!  What an awesome group of girls. 

February 29 is National Rare Disease Day.  (Once every 4 years?  Really?)  Just this year we have lost 8 MPS kids.  And that's only MPS.  There are so many others, like 7000 different diseases.  Please send some happy thoughts to our friends - -Josiah (who needs lots of prayers, he had his hip surgery yesterday and is in a lot of pain), Joseph, Liam, Baby Sydney, Angel DaNNY's family, Gracie Larson, Cuyler, Zachary & Amelia, Wyatt, Ethan, Rylie, Bella, and so many others.  And as always, there are never the words to say how much your support means to us.  Without you, our Vic-Torie wouldn't be as sweet!