Thursday, April 7, 2011

T+427 Papa Tom's Birthday


Cool girls in glasses!
  Tom's birthday is today, and we had a great camping trip to celebrate!  We didn't go far - just to Robb State Park here in Fruita, but it was far enough.  Torie and Tom and I were all thrilled to have Stacey and Matt join us.  John and Connie came for dinner one night, and it was so nice to see them again.  I haven't seen them since the Alaska cruise last September, and Torie enjoyed meeting them.  Lexie and Greg came for dinner the next night, and Torie loved telling them all about camping. 

I think Torie's favorite part was roasting marshmallows.  This was her first time!  And of course she loved decorating Tom's "cake" and singing Happy Birthday.  Having Torie camp with us was the best gift.  There were times over the last year that we didn't know if it would ever happen.  And she was able to be an almost "normal" kid.  She ran, and played, and rode her bike, and ate marshmallows!

My marshmallows!
  Monday's labs were excellent...hemoglobin of 12.7, platelets 246, albumin and total protein are both up, and her urine protein is still negative.  Today her Prednisone dose dropped to 5mg!  She is feeling great - running everywhere.  She very seldom just walks; she runs.  It seems like she really is getting there....Vic-Torie!

Roasting with Papa Tom


"That gooey.  I like 'em."


The candles may say "60" but Torie still says "Papa Tom 100."


"Now fire!"