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| Cool girls in glasses! |
Tom's birthday is today, and we had a great camping trip to celebrate! We didn't go far - just to Robb State Park here in Fruita, but it was far enough. Torie and Tom and I were all thrilled to have Stacey and Matt join us. John and Connie came for dinner one night, and it was so nice to see them again. I haven't seen them since the Alaska cruise last September, and Torie enjoyed meeting them. Lexie and Greg came for dinner the next night, and Torie loved telling them all about camping.
I think Torie's favorite part was roasting marshmallows. This was her first time! And of course she loved decorating Tom's "cake" and singing Happy Birthday. Having Torie camp with us was the best gift. There were times over the last year that we didn't know if it would ever happen. And she was able to be an almost "normal" kid. She ran, and played, and rode her bike, and ate marshmallows!
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| My marshmallows! |
Monday's labs were excellent...hemoglobin of 12.7, platelets 246, albumin and total protein are both up, and her urine protein is still negative. Today her Prednisone dose dropped to 5mg! She is feeling great - running everywhere. She very seldom just walks; she runs. It seems like she really is getting there....Vic-Torie!
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| Roasting with Papa Tom |
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| "That gooey. I like 'em." |
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| The candles may say "60" but Torie still says "Papa Tom 100." |
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| "Now fire!" |
How very exciting to go camping! AND roast marshmallows! Too bad the "Fry girls" weren't there to entertain everyone with old camp songs!
ReplyDeleteI enjoyed having your great grandma visit. Hope it's not too long before I can make it over to see all of you!
It is so great to see you having fun doing lots of different things! Keep up the good numbers and keep having fun-that's what 4 year olds are supposed to do! Vic-Torie is right!
P.S. Happy Birthday, Tom-welcome to the 60's!
Love & Hugs,
Aunt Lettie
Happy Birthday to Papa Tom! So, so great to see Torie with a huge smile on her face. So many reasons to go camping and celebrate! Keep running, Torie Girl!
ReplyDeleteHappy Birthday to Papa Tom! We love all the pictures of our sweet girl and so very glad you are doing so well. It has been a hard journey but we are so very thankful that our families could do it together. The more your curls grow the more you look like Rylie :O)... so very cute! Say hi to your grandma's for us, we miss you all!!
ReplyDeleteLove,
Si and family