T+208 Minnesota State Fair

Yesterday we went to BMT Clinic and found out that Torie's WBC's dropped to 1.4 with an ANC of 900. These counts haven't been this low since March. Dr. Orchard isn't sure why they are down, but it could be part of the Evan's Syndrome that she is dealing with. She got an infusion of G-CSF(medicine that stimulates the one marrow to produce more white cells) so hopefully Thursday these numbers will be higher. The good news is her hemoglobin came up a little, and so did platelets. For some reason she has been having pain; we think in her legs and her hips. She hasn't wanted to stand up or walk, and when she does stand, she shakes and cries. I asked Dr. Orchard if we could try some codeine because plain Tylenol didn't seem to be cutting it. I gave it to her when we got back from Clinic, and after her nap, she walked! Hooray! We're still not sure why she hurts though. She had hip and knee X-Rays done, but there wasn't anything that jumped out when Dr. O looked at them. The roller coaster ride continues...
Today we went to the Minnesota State Fair. Emily, the ChildLife Specialist at Chemo Clinic gave us tickets last week. We didn't want to go on the weekend, and today was supposed to be a little cooler. We had a great time, and this fair is HUGE. It covers blocks and blocks. And I can't imagine how many people would be there on the weekend. There were plenty today. We saw baby pigs, calves, sheep and horses. Including the Merry-Go-Round ones. Torie does love Merry-Go-Rounds, as you may have noticed.
They even use horses to make ice cream. John Deere engine horsepower, that is. The engine is hooked to the cranks on ice cream makers. Pretty nifty, huh?

We walked around for about 3 hours and saw just a little bit of all there was. Not only were we tired, but this little fair-girl had the right idea...just take a nap!

Thanks for continuing to follow with us, and if you can, restart the prayers for those cells to grow and engraft. It feels like we've taken a huge step backward with having G-CSF again, but we know the power of prayer and happy thoughts. Grow cells, grow! Engraft! Vic-Torie!