Torie's Story: New Settings

Friday, October 1, 2010

New Settings

I'm so sorry but I now have to make this a private blog. If you would like an invitation to view this, please email me at ta2dytrsh@bresnan.net.

2 comments:

JosiahsjourneyOctober 7, 2010 at 8:50 AM
Hey Missy, I have tried to e-mail and face book your grandma and I still can't get ahold of her. Please give her that sweet smile of yours and ask her to let me in to your elite circle.... can't wait to hear how your doing. We love you and are still praying!!

TN family
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Jan ChanskiOctober 7, 2010 at 6:45 PM
The Chanskis can't get ahold of Grand Cheryl either. We continue to pray for those numbers to improve and the fever to be gone.

chanski@comcast.net
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What is MPS I?

Mucopolysaccharidosis I (MPS I), pronounced mew-ko-pol-ee-sak-ah-ri-doh-sis one, is a rare genetic disorder that affects many body systems and that leads to organ damage. It is caused by a defect in the gene that makes an enzyme called alpha-L-iduronidase (pronounced al-fa el eye-dur-on-i-dase). Because of this defect, cells either produce the enzyme in low amounts or cannot produce it at all. The enzyme is needed to break down substances called “glycosaminoglycans” (GAGs), pronounced gly-cose-a-mee-no-gly-cans, which are by-products of chemical reactions in the body’s cells. If GAGs are not broken down, they build up in the cell, eventually leading to cell, tissue, and organ damage.

Torie's Story

Friday, October 1, 2010

New Settings

2 comments:

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