IV ERT #4...NOT!

Torie woke up this morning with that same darn fever..101.8F/38.7C. Her enzyme infusion was cancelled but I was concerned about a fever in a kid with a central line. Infection is a huge risk with these. Just our luck, Dr. Thomas is out of town and Janelle doesn't work on Tuesdays. After a quick chat with Teresa at the BMT (Blood and Marrow Transplant) clinic in Minnesota, we went to the ER at Denver Children's Hospital. They gave her some IV fluid, and did some lab work. One test was blood cultures to check for septicemia - a blood infection. They also did a CRP (C-reactive Protein). This is a blood test that rises with acute inflamation, such as an infection. Her CRP was quite elevated at 22.0. We were able to get discharged from the ER and come back to Shaun's. She's so puny though. Floppy and lethargic. She doesn't feel like eating or drinking. So basically the same as last night without the barf. Blood cultures are resulted at 24 and 48 hours, so we're just holding our breath and praying they'll be negative. So no ERT this week. Hopefully she'll be back to her bright-eyed and bushy-tailed self soon. We'll be watching her close and we are grateful for your thoughts. Send lots of good ones her way!