What day is it?

I'm not sure but someone told me it's Saturday now. We are at Children's Hospital and we've been here since Wednesday morning. Torie has MRSA (Methacillin Resistant Staph Aureus) both in her line and in her blood. This is called bacteremia or sespis. Pretty much one of the worst infections you can get. She's a couple of different antibiotics, Vancomycin and Rifampin. One of the biggest worries right now is that the infection will settle in the valves of her heart. Hurler kids can have lots of problems with valves anyway so they are keeping a close eye her. Her blood cultures were growing Staph at about 12 hours. When they grow that quickly, the infection is fairly aggresive. We spent Wednesday in the ER and got to her room about 5:30 in the evening. What a scary sick cookie she was that day. They even moved her to a resuscitation room in the ER and for a while I was thinking that she may need that. SO SO Sick. After IV fluid she tolerated the Vanco(mycin) without any problems. She has been so lethargic. And pretty high fevers...39.7C/103.5F...that only go down with both Tylenol AND Motrin. And they come back pretty quickly after that. She has had an echocardiogram of her heart to see if she has any increased valve problems and we are waiting for those results. The Rifampin was started just in case she does. As a side note, Rifampin turns body fluids orange. Not just a little peach tint - Orange! Pretty cool party trick, huh? Anyway. They checked the blood culture results to see what the MRSA was sensitive to, and Vanco will work. Now they just have to find the right dose, so they are checking her Vanco levels about every third dose. She has had a few chest X-rays and so far they look pretty good. One of our biggest concerns is whether or not she'll be able to keep her line. Our hope is that infusing the Vanco through the line will get rid of any infection that is "clinging" to the line. If we lose her line she'll have to be poked for IV's for antibiotics and for her enzyme. And she has been so hard to find veins on. The other option is to have a new line placed but that means surgery and the breathing tube was so hard to get in that we're nervous about that. So cross your fingers for the antibiotics doing the job. Torie will have at least 14 days of antibiotics so we're here for a while. I'm waiting for Docs to round so I'll update more soon.