Torie's Story: T+173 Back Home!

Tuesday, July 27, 2010

T+173 Back Home!

Torie was discharged from Peds today and she is home in her own bed tonight! She'll be on home antibiotics (Vancomycin) for 2 more weeks. Tomorrow morning she has an appointment with Dr. Mike, and then lab work after to check her CSA level. Thanks for all your help getting her home...Vic-Torie!

1 comment:

Aunt LettieJuly 28, 2010 at 7:49 AM
Hooray hooray!!!!!!!!

I'm so happy you got to go home! Hope all the lab work, tests go well.

You're always in my thoughts and prayers!
Love,
Aunt Lettie
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What is MPS I?

Mucopolysaccharidosis I (MPS I), pronounced mew-ko-pol-ee-sak-ah-ri-doh-sis one, is a rare genetic disorder that affects many body systems and that leads to organ damage. It is caused by a defect in the gene that makes an enzyme called alpha-L-iduronidase (pronounced al-fa el eye-dur-on-i-dase). Because of this defect, cells either produce the enzyme in low amounts or cannot produce it at all. The enzyme is needed to break down substances called “glycosaminoglycans” (GAGs), pronounced gly-cose-a-mee-no-gly-cans, which are by-products of chemical reactions in the body’s cells. If GAGs are not broken down, they build up in the cell, eventually leading to cell, tissue, and organ damage.

Torie's Story

Tuesday, July 27, 2010

T+173 Back Home!

1 comment:

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