Torie is back in the hospital on 5D, but tonight she seems to be doing a little better. The last couple of days have been kinda crazy, so let me go back and catch you up. Yesterday morning we went to Chemo Clinic for Torie's 3rd dose of Rituxan. We were really hoping her counts had come up a little more, but they dropped again. Hemoglobin to 7.5, platelets to 91. She was feeling worse, too. She woke up barfing yesterday morning, and had a fever. About half way through her Rituxan, her fever went up to 100.5, and her O2 sat (oxygen level) dropped to 88%. Dr. Burke stopped her infusion, talked to the BMT gang, and of course, a temp of 100.5 means admission for 48 hours of Vancomycin and Fortaz. Dr. Burke was concerned about her pain in her hips/back, and wanted an MRI to rule out Avascular Necrosis (condition where bone dies because it's not getting blood flow) before her next steroids. He is also thinking that the Rituxan is not working like he had hoped. Her counts just aren't coming up. The next step may be an oral chemo - 6MP. And he told us not to book a flight home yet. I'm afraid we're going to be a while.
Once we got to Torie's room (510 this time. We hadn't been in this one yet.) she had more labs drawn, blood cultures, and tons of viral cultures. She slept quite a bit, and I wish I could say the same. She did wake up so that we could have a tea party from about 2 to 4 (yes, AM). Her labs this morning were even lower. Her hemoglobin was 6.5, platelets 84, WBC 1.1, and ANC 500. So she has gotten blood and G-CSF today. Her inflammatory markers are really high. CRP is 44.7 and Sed Rate is >140. She definitely has something going on, so they got her into MRI to make sure that she doesn't have a sepsis in her hips, and thankfully that is clear. It would have been nice to have an answer, but we'll keep waiting. Like I said, she seems to feel a little better tonight. Please send her extra prayers...she's needing more than usual right now...that her body can fight whatever is going on with so few white cells, and that her counts come up. Thanks so much! Fight cells, fight! Vic-Torie!
Torie Doll, You are quite the young lady. Maybe you could just whisper in your doctors ear what is going on with your special little body. You are so fortunate to so many people who love you so much and want the very best for you. You are in our prayers always as are those angles who are taking care of you ( especially your grand and great grandmothers). Remember, whisper in your docs ear. You have things to do and places to go ( like Colorado and Arizona ). Uncle Eddy and Aunt Lanny
ReplyDeleteYou all definitely continue in our thoughts and prayers - we read your updates constantly and root for Vic-Torie!!!
ReplyDeleteTorie girl, we hope you are feeling better. Keep fighting off whatever is happening in your body. We love you and are praying for your complete recovery.
ReplyDeleteCheryl, thanks for the update. Hang in there, Grandmas. Life on 5D isn't the most fun, but we're glad Torie is getting help.
Lots of love from Arvada!