T+153 Back Home Again

Torie was discharged from the hospital last night about 7:30 and was happy to be going home with her Mommy and Daddy. Her CSA level dropped to the 400's yesterday afternoon, and today she was down in the 200's. We'll go back tomorrow to check again. When her level is down around 150 - I'm betting tomorrow - she'll start back on her CSA. Her other labs are looking good except for potassium. Yesterday it dropped to 2.2, so she's back on that. Her BUN is almost normal, and her liver enzymes are better than they've been. After much discussion between the docs here and in Minnesota, Torie is off VFend(voriconizole). This is the antifungal she's been on. Unfortunately, after she's been on it for about a week, her liver starts protesting. Then it takes about 3 weeks for enzyme levels to drop enough to restart it. She ends up with very little coverage this way. Now she's on fluconizole. I picked it up today and I was so excited to see the price tag...it's only $491.00 a month. Sure beats $1700! We're trying to get her back into PT, and they saw her yesterday in the hospital. Hopefully that will get her into the outpatient system a little more quickly. She has gotten so weak (and fat!) that she has to start moving more. Cross your fingers they'll get her in soon! Vic-Torie!