T+117 & Back at The House Again

We're back at Ronald McDonald House! Torie did well last night, and her blood pressure stayed down without nifedipine, so the docs agreed with her that she was ready to leave. We had to pick up a few new medicines before we left, and then Home Health came with her IV CSA (cyclosporin). She is now back to 21 doses of medicine through the day and on continuous tube feeding. She did manage to avoid home TPN though. Jerry, our dietician friend, talked the docs out of TPN because he knows how much better Torie eats when she gets back here. Last night she told me she wanted spaghetti at RMH, and as luck would have it, that's exactly what was on the menu tonight! She ate really well, and went to bed right after dinner. She's been more active today, talking more, smiling and laughing more, then she has in the last 3 weeks. We are so hoping this is just a "lay-over" and that we'll be on our way home soon.

It's hard to believe that it's June, and that we are starting our sixth month here. I was looking back at old posts from January the other night. I wrote that Mom and I were "tired" when we had been here about 3 weeks. Man alive, I didn't know what tired was! It felt like we'd been gone so long already. If I knew then what I know now....I know we couldn't have done it without your support and without the friendship of those we've met here. Pray for a smooth road that will lead us home....Vic-Torie!