Torie's hemoglobin dropped to 6.4 this morning and that means transfusion. However, she has antibodies in her blood now that have to matched and that can take a while. A really long while...
The Red Cross has been working on matching it since about 8:00 this morning and we're still waiting. I think we're in for another long night! Her blood pressure has finally gone down some today and her weight is down to 13.9 kg. She has had really bad diarrhea from the tube feeding they had her on. So bad that it is messing with her electrolytes. We turned it off this morning to give her guts a rest, and we'll try a new one tomorrow. She is still on a fluid restriction. The Silver Lining? She's learning measurements. "Torie have little itty bit water? Please?"
I'm hoping tomorrow her blood pressure will be better and tube feeding will go better. If her lab work cooperates, we may be able to get back to RMH Monday. Our friends Wyatt, Nicole, and Todd are heading home tomorrow. It is so nice getting to know them, and their support and prayers are appreciated. Again, it is both strange and wonderful to be part of this big Hurler family. We will miss them and wish them safe travels! Please keep sending prayers and happy thoughts...we are grateful for them all! Vic-Torie!
So many of us on the receiving end of these blog messages will not fully rest or fully sleep until each one of you are back HOME in Colorado. Our prayers on your behalf will not stop, nor will our love and respect. We also pray for all at the hospital and the clinic who attend Torie. May the Good Lord bless them for their kindnesses to you all. To all of the Hurler families, you are in our prayers. I just know the the Heavens love each of you and are mindful of each one of your concerns. Torie, what an angel you are! May you sleep well tonight. Eddy and Lanny
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